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I finally got in touch with Dr Bohn at Sick Kids regarding autopsy results. It seems (from the preliminary report) that cause of death was a blood clot in the arterial shunt which effectively cut off blood flow (kinda like turning off a tap) to the rest of the body. The shunt (the surgery that she was downgraded to, as it were) is fraught with problems (to quote Dr Bohn), which is why they're switching over to the hybrid (a stent between the aorta and the pulmonary artery). One of the major problems is blood clots. It's a known issue, and even with the amount of bloodthinners (first heparin by IV then enoxyparin by injection) Shannon was on, it still happened with devastating results.
To be honest, I don't feel better knowing this. I didn't care what the cause of death was. Knowing what it was doesn't change anything. My little girl is still a pile of ashes at the funeral home and there's no way that that knowledge alone could bring her back.
To be honest, I don't feel better knowing this. I didn't care what the cause of death was. Knowing what it was doesn't change anything. My little girl is still a pile of ashes at the funeral home and there's no way that that knowledge alone could bring her back.
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